Unmasking the Unseen
DOI:
https://doi.org/10.58445/rars.1630Keywords:
Invisible diseases, treatment, awarenessAbstract
Objective
Invisible diseases, such as Crohn’s disease, arthritis, celiac disease (CD), and diabetes, often go unnoticed by many, leading to widespread misconception. Increased awareness can pave the way for improved treatment, particularly for diseases that frequently remain untreated.
Methods
Participants in the USA from ages 22-77 with a diagnosed invisible disease completed a 24-question survey gathering demographic data and personal insights into their experiences which were analyzed utilizing Excel software. All participants consented.
Results
The narratives offered by participants in this study provided a glimpse into the lived experiences of people dealing with invisible diseases. Their personal views reveal a mosaic of resilience and adaptation, shedding light on the numerous challenges of managing diseases including Crohn's disease, arthritis, CD, and diabetes. From the meticulous dosage of prescriptions to the emotional toll of navigating social interactions, participants' experiences create an obvious representation of the complications that come with the disease. After the study was completed, it was clear that these often undetected diseases play a heavy role in the quality of the patient’s daily lives.
Discussion
The intricate views of responses from participants provide crucial insights into the complex realm of invisible diseases. Their stories not only shed light on the difficulties associated with treating chronic disorders but also highlight the necessity of comprehensive approaches to treatment. By looking into the complexities of lived experiences, this study lays the framework for increasing awareness and understanding of invisible illnesses among healthcare communities and society as a whole. Furthermore, the stories recounted by participants demonstrate the resilience and determination of individuals. As we continue to explore and analyze the data collected, these narratives will continue to act as guiding beacons, revealing paths toward increased care and advocacy for individuals living with invisible diseases.
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